There are parts of Angelman syndrome that are hard… and then there are the seizures
1:06
YouTubeIt's Our Wonderful Life
There are parts of Angelman syndrome that are hard… and then there are the seizures
We’re in the middle of a medication change, and right now it’s been one of the hardest seasons we’ve faced. Griffin has been having 10+ seizures a day, lasting anywhere from 45 seconds to over a minute. We’ve had to use rescue medication, and every seizure leaves us holding our breath. People often ask what’s the hardest part of ...
23K views1 month ago
Shorts
Understanding Angelman Syndrome: A Special Needs Girl's Emotional Response
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Angelman syndrome and epilepsy: awareness changes lives. #epilepsy #epilepsyawareness
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The reality of taking my son with Angelman syndrome swimming. 💙
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Traveling with a child who has Angelman Syndrome means safety is always a priority
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19 days until the Angelman Syndrome Family Conference in Denver! 💙
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